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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

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The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Area Agency on Aging serving your county. CICOA Aging & In-Home Solutions covers every county in this metro -- one call reaches the same agency regardless of which county you are in.
  5. Understand what memory care will require later. Indiana requires a written Alzheimer's and Dementia Special Care Disclosure, not a separate certification -- ask to see it by name when the time comes.

Questions families ask

What's the difference between hospice and palliative care?

Palliative care focuses on symptom relief and quality of life, and can run alongside curative treatment at any stage of an illness. Hospice is for a life-limiting illness when a physician expects six months or less if the disease runs its normal course, and generally means curative treatment has stopped.

What license does Indiana require for assisted living?

Indiana licenses assisted-living-type communities as Residential Care Facilities (RCF) under 410 IAC 16.2-5 and Indiana Code 16-28-2, issued by the Indiana Department of Health. It is a single license type -- Indiana does not tier assisted living into Type A/Type B categories the way Texas does.

Does Indiana require every assisted living community to be licensed?

No. Under 410 IAC 16.2-5-0.5(c), a community that provides only room, board, housekeeping and activities -- without administering medication or providing nursing care -- is not required to hold a Residential Care Facility license at all. Some buildings marketed as assisted living in Indiana may carry no state license, so always confirm directly.

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